How are my rights protected?
AIDS Research Alliance is committed to ensuring that the rights and well being of each study volunteer is protected. As a potential participant, it is important that you become familiar with your rights as a clinical trial volunteer. Here’s a list of some important rights.
You have the right to…
- Ask questions or express concerns at any point before, during, or after the study.
- Receive clear and understandable answers to all your questions.
- Know what treatment is being studied and what is known about it.
- Understand all aspects of what it means to participate.
- Know who is conducting the research and why.
- Know all known potential risks and benefits associated with the study drug before you participate.
- Discuss the informed consent form, which spells out what will happen during the study, what is expected of you as a participant, and any potential benefits or risk, and your rights as a participant.
- Understand what other treatments may be available, including non-investigational treatments.
- Receive a signed copy of your informed consent form.
- Know what to do if a complication arises.
- Not be pressured to participate.
- Decide not to participate or stop participating at any time without penalty.
- Know how your safety, privacy and confidentiality will be protected during the study.
Click here to read a US News report on ways that volunteers are protected.
Click here for information on ARA trials to see if you're eligible.
Click here for a National database of HIV trials across the country.
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